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Always in awe of those who see a problem and tackle it with #love ... or tech ... or policy ... or plants 🙌🏽🌎

“I’d like to do a song of great social and political import” - #janisjoplin 🙌🏽🌎 ↘️ “Oh Lord, won’t you buy me a Mercedes Benz, my friends all drive Porsches I must make amends. Worked hard all my lifetime, no help from my friends. So, oh Lord, won’t you buy me a Mercedes Benz.” ↘️ “It’s the want of something that gives you the blues.” ... “It’s not what isn’t, it’s what you wish was that makes unhappiness.” #hippyshit

Minding our habits... listening to her favorite song...again 🙉🤪 • We are both experiencing a rapid form of development. Around food, words, jumping, falling, etc. We’re quickly creating or crushing daily habits and it’s been a whirlwind of surprising outcomes. • She always reminds me that my habitual parenting needs an update. I’ve learned that my habits can limit her potential, and jogging myself out of the daily rut is important if I want to take advantage of that rapidly developing brain of hers. • I cannot stress enough just how capable typical children are and how our parenting habits, coupled with society’s cultural presets, determine our children’s habits; in turn, we build limitations on both ourselves and our children. From any school, to any lesson plan; any food store, regular driving route, or ANY neighborhood you find yourself living in, it’s setting limits and creating boundaries of perspective, growth, and most importantly, potential. • Exposure to new experiences, new ways to strengthen your fingers, how to properly use your core muscles, different play styles to ensure synaptic connections and speech formation. Early stage learning is what my child needs help with at the rudimentary level, so we can reach our potential and participate in society at an average level. And growth becomes double-time work for the atypical parent that tries to parent as you wanted BEFORE you knew special was going to happen! All while maintaining your sanity, self care, personal convictions, or personal space from healthcare providers who care equally about Trinity’s growth🧘🏽‍♀️ • Because we’re playing the constant game of catch-up, she cannot stay in one state of development for too long. If she isn’t given opportunities to make certain rudimentary connections with her brain and body, she’s in danger of never making those connections. Watching her create and crush habits has been a mind-blowing realization of how rapidly children can conquer life. I’m grateful to the array of therapists we really heavily on. They consistently remind parents that we’re an equal part of the process—at times an equal part of the problem 😆 Growth accelerates at home, if we let it.

Misshapen heart 📝💝

π In an infinite state of mind ⚪️ be as boundless as the ever-expanding space we find ourselves in. #nolimits

What sin is this but a rising sun declaring life worthy for all 🌎—🌞 • • • #Sunrise • Snap a picture of the day when wee light imbibes you. Don’t give up. It’s the essence of the way. Keep the light ignited. • It’s a new day. • It’s a new light. • It’s a new life for you ❤️ • • 2019 projects underway - @katrahqueymusic

We conquer fear 💪🏽 #beware #longpost • There’s a magical moment for some of us who raise special-needs kiddos: when you graduate from the survival stage that resulted from your little one’s genetic syndrome and can make the shift towards typical parenting. • I can focus on ABC’s and 1-2-3’s rather than handling reflux episode number 3 (out of 6) for the day. Instead of puzzling out the horrible symptoms of a misdiagnosed anorectal malformation, or responding to the viral dangers that can threaten diseased lungs, we now create synapses from the overlooked and unappreciated milestone of ‘pretend play.’ • Parenting transitions like this don’t always happen for many families. As children land “randomly” on the spectrum of their respective syndrome, they present very different medical anomalies and outcomes—even for two children with the same genetic mutation. • While we’ve swapped early a.m. low-oxygen alarms for restful nights and quarterly—rather than weekly—clinic visits, some parents are still up in the early a.m. regularly cleaning airways to ensure their kiddos are still breathing by morning. • We get to continue the exhausting and utterly frustrating act of slowly but successfully learning how to eat—and I’m well aware that some parent out there has just been told they cannot feed their 4yo by mouth anymore. The feeding tube will remain a permanent fixture in their lives. • The struggle is alive for both the parent and the special-needs child. Watching other children with medical complexities fail to thrive or ultimately pass away is deeply saddening. It brings me to my knees in complete gratitude and I’ve had to set aside my emotions and learn to count blessings 🧘🏽‍♀️🙏🏽 • Yes, our hard work may be just as real as the next family with special needs, but I know my efforts as a nurse-mom don’t always match up with the efforts of parents with more medically or neurologically complex children. #donethinkingfortheday

Forget the expectations. The ignorance in accusations. The pettiness of yesteryears that infiltrate the regretful mind. Forget the future—-for just a moment—just long enough to hear your spirit whisper words of the present. Words of action. Of commitment. Of pointed middle fingers and kickass accomplishments. Of self-care. Revivals. Manifestations. The failure of absolutes. And the beauty in broken barriers... . Cheers to going beyond beliefs 🍻 . (You’ve got to inject at least a smidge of meaning and poetry at the end of a decade 🤷🏽‍♀️) #TurningFortySoon

Sweet candies of earth 🍋🌎 . Such a quick, easy and fun way to add nutrient-dense foods to the table ❤️ clockwise: papaya, mango, dried figs, dragon fruit, rambutan, star fruit

Happy birthday, little brother @tech.flips --- Remember, the minutiae of each day lead us to larger goals; larger goals keep us motivated and offer purpose. And most importantly, bowing down to one's current state and scrutinizing what you are grateful for helps us balance our daily duties in this life---ultimately keeping us from regret and leading us down the path of happiness.

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